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Genetic Defects Linked With Rare Bearded Lady
New research provides exciting genetic insight into a rare syndrome that first appeared in the medical literature in the mid 1800s with the case of Julia Pastrana, the world"s most notorious bearded lady. The study, published by Cell Press in the May 21st issue of the American Journal of Human Genetics, reveals intriguing molecular clues about the pathogenesis of this mysterious condition that has captured the attention of the public since the Middle Ages.

NOW Election Highlights Debate Over Strategy For Future Of Feminist Movement
The AP/Kansas City Star on Sunday examined how the upcoming election for the next president of the National Organization for Women has brought to the forefront a debate over how the feminist movement should define itself moving forward. NOW President Kim Gandy is stepping down after eight years in which she led the group in opposition to many of former President George W. Bush"s policies. Running to replace her are Latifa Lyles, a 33-year-old who serves as a vice president to Gandy, and Terry O"Neill, a 56-year-old who served as NOW"s vice president for membership from 2001 to 2005. Lyles, who is black, would be NOW"s youngest president while O"Neill, who is white, would be its oldest to start a term. According to the AP/Star, the election represents "both an unusual clash of generations and an opportunity for activists to confront some of the challenges facing the feminist movement." The election will be held at NOW"s conference in Indianapolis this weekend.The candidates share the goals of ensuring that women"s needs are represented in health care reform and economic recovery efforts, and they both support working to make abortion and birth control more accessible. Lyles said she contrasts with NOW"s current membership, which is mostly white and older than age 40. Lyles believes she could help give the organization a more diverse, younger image and help encourage participation from a broader range of women. "The profile of NOW is just as important as the work we do," she said, adding, "There are a lot of antiquated notions about what feminism is." Gandy, who has endorsed Lyles, said, "It"s hard to ignore the fact there"s been a generational shift in the country, and an organization that doesn"t recognize that is living in the past." She added that Lyles" "youth is not a detriment, but an advantage. ... She"ll take NOW to a different level." Jessica Valenti, a prominent younger feminist and founder of the blog Feministing, said, "This could be the moment where NOW becomes super-relevant to the feminist movement again."O"Neill said she would focus on grassroots organizing and membership recruitment. She said that "even with a friend in the White House and a lot of friends in the Congress, it"s going to take well-organized, grassroots movement to advance our agenda." O"Neill added, "I keep hearing "Terry, I want to see more activism in my community,"" adding, "The press releases, the media exposure, invitations to the White House -- these are excellent things, but they"re not enough. The grass roots are not personally engaged." Former NOW President Patricia Ireland, who supports O"Neill, said, "There is a role that requires us to take unpopular stands and push on our friends. That"s what I think [O"Neill] really gets. She"s the one I believe will be very willing to use a wide array of tactics -- not just traditional letters and e-mails, but also engage in civil disobedience, organize fasts, be at some congressman"s district office" (Crary, AP/Kansas City Star, 6/14).
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Do Not-For-Profit Nursing Homes Provide Better Quality Care?

On average, not-for-profit nursing homes deliver higher quality care than do for-profit nursing homes, according to a study published on bmj.com today. However, the authors stress that many factors may influence this relation and more work is needed to explore the impact of profit status on the quality of care delivered. Concerns about quality of care in nursing home care are widespread. In the United States two thirds of nursing homes are for-profit institutions, while in Canada, just over half of nursing homes are in for-profit ownership. Similarly, in the UK, more than half of healthcare beds belong to independent nursing homes for older people, most of which are operated by for-profit institutions. So a team of researchers based in Canada analysed the results of 82 studies spanning 1965 to 2003 comparing quality of care in for-profit and not-for-profit nursing homes. Most of the studies were carried out in the US and Canada. Differences in study design and quality were taken into account to minimise bias. Forty studies showed significantly better quality in not-for-profit homes, while three studies favoured quality of care in for-profit homes. The remaining studies had mixed results suggesting that, although the average effect is clear, there is substantial variation across institutions. Further analysis suggested that not-for-profit facilities delivered higher quality care than did for-profit facilities for two of the four most frequently used quality measures: more or higher quality staffing and lower pressure ulcer prevalence. The analysis also favoured not-for-profit homes in the other two measures: use of physical restraint and lower regulatory agency deficiencies. But these results were not statistically significant. Based on these findings, the authors estimate that nursing home residents in Canada would receive roughly 42,000 more hours of nursing care per day and those in the United States would receive 500,000 more hours of nursing care per day if not-for-profit institutions provided all nursing home care. Similarly, they estimate that 600 of 7,000 residents with pressure ulcers in Canada, and 7,000 of 80,000 residents with pressure ulcers in the United States are attributable to for-profit ownership. These findings provide insight into average effects and suggest a trend towards higher quality care in not-for-profit facilities than for-profit homes, write the authors. However, more work is now required to explore the factors that influence this relationship, they conclude. This view is supported by Professor Tamara Konetzka from the University of Chicago in an accompanying editorial, who believes that more data are needed to increase our understanding of the association between profit status and the quality of nursing homes. But she points out that many factors other than profit status have been strongly linked to the quality of nursing home care, and warns that, "if differences in quality between for-profit and not-for-profit nursing homes stem at least in part from differences in revenues rather than mission, eliminating for-profit homes may do little to eliminate differences in quality." Link to Article Link to Editorial British Medical Journal


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